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Kasia

Renal Business Today managing editor Kasia Michalik is a graduate of Walter Cronkite School of Journalism. She joined Virgo Publishing in March 2012.

Run to Fight Alport Syndrome

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I have written many articles about chronic kidney disease (CKD), end-stage renal disease (ESRD), patient comfort, nutrition, end-of-life care, green dialysis, meaningful use and everything else in between. Recently though, I came across something called Alport Syndrome. I've only been in this renal world for a year, so I know that Alport Syndrome is only one of a million new things I will learn about through my writing and dealing with patients, nephrologists, social workers and everyone else in this "niche" renal community.

Alport Syndrome is an inherited kidney disease. One in 5,000 people are effected by it—it affects more males than females. In addition to the harm it does to the kidney, it also causes inner ear and eye issues.

There are organizations out there for every cause and the Phoenix-based Alport Syndrome Foundationis dedicated to educating those with Alport and spreading awareness and support of the genetic disease.

On Sunday, March 24, the Sixth Annual Arizona 5K for Healthy Kidneys will take place. Proceeds from the event help fund workshops, conferences and other educational programs to help patients and families deal with and learn about Alport Syndrome.

The event will kick off at 7 a.m. and will be held at Kiwanis Park in Tempe, Ariz. The race starts at 8 a.m., rain or shine.

Alport Syndrome Foundation hopes to raise a total of $50,000. Participation costs range between zero dollars—if you set up a fundraising page—to $30 for adult participants between the ages of 14 to 100.

To register and take part in this community event visit the Alport Syndrome website.

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